White Swan believes that no-one should suffer unnecessarily, not knowing what is wrong with them, what to do about it, or how to prevent it. This is something we want to change.
In 2015, Julie King was wheelchair-bound and in danger of losing her life. For eight years her health had been deteriorating, yet despite countless tests, doctors were at a loss to explain her condition.
Julie’s brother, Steve King (founder of Black Swan), refused to accept his sister’s prognosis. Using technology to match her symptoms with others by analysing millions of internet conversations, alongside a daily diary recording patterns in how she felt and what she did, they identified two rare conditions which matched her symptoms. Armed with this new information she was diagnosed by doctors with a rare form of Parkinson’s.
Julie is now able to lead a normal life with her family. This inspired the people of Black Swan to set-up White Swan, now a registered charity (No. 1176486).